My exploration into the technologies currently available in wheelchairs is coming to a conclusion, for now. I have one that I can drive. The only thing lacking is the tiedown restraints for within the vehicle — we don’t want the wheelchair bouncing around like popcorn whenever somebody makes a turn.
This *IS* Texas. The road can be… interesting.
I started looking for this wheelchair about a year ago, when I could see how much weaker I have become. It’s to the point that it was affecting my driving of the wheelchair. The joystick, though incredibly sensitive, was still what they call “proportional drive”. The harder I pushed, the faster I would go.
At least that was the theory! If I was chilly or if I was the least bit out of position (and to me 1/64th of an inch made the difference), I could not control the wheelchair. It was frustrating and unsettling sometimes.
Yes, Spinal Muscular Atrophy is unwelcome and progressive in its effects. It is also in my life until Christ’s return. I have to deal with the effects, and have gotten pretty good at it after 50 years of practice.
Still, this time I was dreading the procedure for getting a new wheelchair. I figured that… this time… they would tell me that I am getting too disabled to use the chair.
I was wrong.
Stuart Strack of Alliance Seating and Mobility worked well in listening to my concerns, abilities, and limitations. The evaluation with rehabilitation doctors and physical therapists was detailed. In the office, Kay Barker “walked with me” through the paperwork and approvals from Medicare.
If I had gotten on the stick instead of worrying about the process, I could have avoided about three months of uncomfortable driving situations.
But… the past is the past. I am content with the wheelchair… more than content.
This is the first time in years that I have felt reasonably confident in my driving — in spite of the that I’m still re-learning how to control a piece of equipment.
You see, the joystick isn’t exactly a joystick. There is an incredibly sensitive on-off switch, combined with a display that progressively cycles through eight possible directions and a mode-selector section.
While a joystick is an intuitive device that allows minute adjustments in direction and speed, this system requires a complete stop to change in those things. Doorways are a little bit of a challenge, especially the door from outdoors coming in. (I am going to blame that on the fact that my balance point is in a different place — my rear end sticks out a little farther than I expect. I guess that’s true of many women my age, in and out of wheelchairs…)
This “Not-Quite-a-Joystick” is a blessing, though. Just being able to drive again without fears is an utter delight. This “joystick” is also my computer mouse. When Dragon NaturallySpeaking freezes up, I don’t care anymore — I can fix the problem myself.
There are three speeds: Parking Jets/Indoor Mode (0.6 Mph), Impulse Drive (1.7 Mph), and Warp Speed (2.8 mph). The seat belt system sort of resembles the thing that straps infants into car seats — I’m not going anywhere.
Yes, I’ve given my wheelchair a name: The Captain’s Chair, or in Klingon HoD quS
Tags: Disability, Wheelchair, Spinal Muscular Atrophy, Adapting to Life